Speak Now for Kids Family Advocacy Day

June 15, 2015

Parents of Children With Complex Medical Conditions Are in Washington, D.C. for “Speak Now for Kids Family Advocacy Day”

Dawn McCoy, Mother of Four-Year Old Joshua Cole

(Washington, D.C., Monday, June 15 , 2015) More than 40 child patients and their families will join the Children’s Hospital Association in Washington, D.C. for Speak Now for Kids Family Advocacy Day on June 15 and 16, to speak to the importance of improving health care for the nation’s sickest kids – children with complex medical conditions who are covered by Medicaid.

The two-day event will allow these families to meet with their members of Congress to share their personal health care stories and ask them to pass the bipartisan ACE Kids Act of 2015 (S. 298, H.R. 546).

Dawn McCoy, mother of four-year old Joshua Cole, who has a rare autoimmune condition describes how the ACE Kids Act will help children like Joshua.

SOUNDBITE #1:

MY SON JOSHUA IS A CHARISMATIC FOUR-YEAR OLD. IN TWO-THOUSAND-TWELVE, HE WAS DIAGNOSED WITH EOSINOPHILIC ESOPHAGITIS, OR EOE, THIS IS A RARE AUTOIMMUNE CONDITION THAT LOWERS HIS IMMUNITY, HIS ABILITY TO FIGHT INFECTIONS AND CAUSES SIGNIFICANT FOOD AND ENVIRONMENTAL ALLERGIES.

SOUNDBITE #2:

JOSHUA IS IN WASHINGTON, D.C. TO RAISE AWARENESS FOR THE ACE KIDS ACT OF TWO-THOUSAND-FIFTEEN. THIS IS A BIPARTISAN BILL THAT WOULD IMPROVE CARE FOR THE SICKEST KIDS WITH COMPLEX MEDICAL CONDITIONS. IT WOULD ALSO HELP REDUCE MEDICAL COSTS. THE ACE KIDS ACT WOULD ESTABLISH REGIONAL NETWORKS TO MEET THE NEEDS OF CHILDREN WITH MEDICAL COMPLEXITY. IN TURN, IT WOULD BETTER COORDINATE THEIR CARE RESULTING IN REDUCED MEDICAL COSTS BY PREVENTING READMISSIONS AND EMERGENCY ROOM USE.

For more information, visit http://www.speaknowforkids.org/

 

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